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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Another letter from the GP today.
I have to go and have blood tests at the surgery AND the hospital for something called "RENIN", plus start a new drug alongside the hydrocortisone. I will have to go into hospital for a day for further tests following seeing the specialists in March. This time the letter came with an appt for tues. no ringing up hassle at least!
The RA is really, really bad.
I managed to have my hair cut this afternoon- it was supposed to be a wet cut but I couldnt sit in the salon chair and move my neck.
in the end had it done standing over the basin. its a silly thing but it upset me.
Been in bed since. too many things to list have gone wrong. there has very certainly been a sudden acceleration in the RA.
The gp has asked to see me as the CRP just keeps rising and the ESR is up too. They are checking for "other things" as the lumps on my head and leg are about an inch wide or so and this is not right.
We have a date for Gem moving (march 2nd). I have paid my PA extra time and she is coming to help Richard and Gem sort out her things for the move. She is soooooo excited about the special boarding school, equine therapy, cat cuddling etc. I wont be much physical help and me blubbing in a corner is going to mystify Gems and not help things- not least me- so I am going to my mums with michael and bernice sunday afternoon.
I will keep you posted but I really could do with being rather better. If someone could arrange this I'd be grateful!!!!!
Love
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Oh Jenni
I was in tears reading your post. it's sooo unfair that you have to suffer so much. Will remember you in my prayers and light a candle for you at church tomorrow
Much love
Maria x.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Jenni, I wish we could do something, if only it were possible. So glad for Gemma, and the way you are going about the move is the best for her. Its so hard for you, but if you are there you will be so upset and as you say, she will be confused. So sorry you are having such a bad time, I really dont know what to say. Its just so upsetting hearing all these problems that you are going through, and not being able to help you. You are always here for all of us, with good advice and support, I so wish we could do more Jenni. I wish you some rest and relief from pain and tiredness. BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 312
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Dear Jenni, please know that I am thinking of you and praying that your current medical
problems receive the best possible treatment and that your R.A recedes again to a more manageable
state.
I am sure you know how many friends you have on here who, I believe, will all be thinking of you and
sending much love your way.
I will be looking out for your posts and hope you let us all know how you are doing because we care about you so much.
Much love to you,
Fiona
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Rank: Advanced Member
Groups: Registered
Joined: 1/27/2010
Posts: 75
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Dear Jenni
You are such a support for everyone else I wish I could do something to help YOU this time. I hope the docs can sort something out for you and start on the road to making you feel better
Love and hugs
Clairexx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Thinking of you Jenni - good news about Gemma, but you need something to go right for YOU, asap. Take care, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Jenni,
I really wish the RA would give you a break while you get your other problems sorted out.
It just doesn't seem fair that one person can have so many problems and if it was possible to share them with you , we all would I'm sure just so that you could have a rest from it all.
You are doing the best thing for Gemma and hopefully one day you will reap the rewards .
Love and hugs, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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o Jenni
My thoughts are echoing all of the others. I truly believe the power of positive thoughts and love from your friends can be more powerful than any of us can actually imagine.....
& We are all there with you in our thoughts, we will never go away so wherever you are, never forget - you are absolutely surrounded by an invisible bubble of positive thoughts, lots and lots of love and gentle hugs, wishing you the best support, treatment and relief, always.
Take care of you and well done for all those positives Gemma is now about to experience. YOU and your loved ones have brought about these positives, so now it surely has got to be your long awaited turn for some positive experiences especially for you,
wishing u all the very best, as always and sending even more love and hugs ~ Lizzie xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Jenni my heart goes out to you. I am pleased that Gems is excited and is looking forward to the things which she needs. I wonder if, when that difficult day has gone, your body might be able to relax a little. Maybe the aggravated symptoms are being caused by huge stress and will settle down. YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jenni It's wonderful that Gemma is looking forward to the change and I'm sure this will bring with it valuable benefits for your whole family. Stress can wreak havoc on the immune system and just maybe once Gemma is settled and you feel more at peace with things you too, as Julie says, will start to feel the benefit. Thinking of you at this difficult time. Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Jenni,
Fantastic news about Gems. I think Lyn is right, "stress has an auto immune response," and you've certainly had more than your fair share of it. Thinking of you, and hoping the pain eases soon, and sending out lots of positive vibes,
love,
Barbara
XXXXX
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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Jenni Praying and for Gems i hope you will start feeling better when the stress dies down . and meds kick in and work . Wish i was closer i would help you out . christine  The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Jenni
I am heartfelt sorry that you are going through more RA crap. What you have put on your plate these past couple of months have been extreme. Hopefully this is just a signal to you to say stop and relax and does not have any sinister connotatiions.
I believe my RA was triggered by stress and hormones and it being mild is life altering enough so I have my fingers crossed that this will go away once you have had enough care and rest so you can have your life back on track.
Love
Mari xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 288 Location: LUTON
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Dearest Jenni, I hope with all hope that you that your medication is working for you and that are feeling better.
Good luck to Gemma on her new adventure xx
Anne-m xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Dearest Jenni
The responses to your post have shown the depth of feeling and love the forum members have for you and your family.
Praying for some respite for you from this insane disease and sending love and prayers for ALL the family, as always
Jeanxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Jenni
Thinking of you and your family. Gentle hugs and hope you start to feel a little better soon.
Jackie
xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 235
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Dear Jenni, I thought I had posted a reply already, but I seem to have lost it! Sorry you are having such a hard time!! I hope you have a pleasant afternoon at your moms. It is hard enough with RA without other 'stuff' going on. I am thinking of you!
Big hugs
Deb x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 259
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Thinking of you all Jenni.  lots of love, Jan xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Thinking of you Jenni , hope things will settle down soon x
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Rank: Advanced Member  Groups: Registered
Joined: 12/8/2009 Posts: 124 Location: Wolverhampton
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Dear Jenni,
Thinking of you all, can't believe you are experiencing further RA problems.
Gentle hugs coming your way.
Nina xx
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